Information détaillée

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Titre du projet :

Precise Treatment for Pediatric Diabetes: Providing the right care, for the right patient, at the right time, over time

Chercheur principal :

Amed, Shazhan; Clements, Mark A; Tang, Tricia S; Wasserman, Wyeth W

Co-chercheurs :

Miller, Jennifer; Abdulhussein, Fatema; Bone, Jeffrey N; Borycki, Elizabeth M; Görges, Matthias; Greyson, Devon; Kushniruk, André W; Lynn, Francis C; van Rooij, Tibor W; Verchere, Bruce C; Virani, Alice; Virani, Anila

Directeur(s) de recherche :

S/O

Établisssement payé :

University of British Columbia

Établissement de recherche :

University of British Columbia

Département :

Pediatrics

Programme :

Subvention d'équipe :IRSC-FRDJ : Médecine de précision dans le diabète de type 1

Concours (année/mois) :

202208

CEP désigné :

Subvention d'équipe : IRSC-FRDJ : Médecine de précision dans le diabète de type 1

Institut principal :

Nutrition, métabolisme et diabète

Thème principal :

Recherche clinique

Durée (année/mois) :

4 ans 0 mois

Contribution des IRSC :

Donateurs :

Budget 2021 Initiative diabet

Montant :

1 750 000$

Équipement :

0$

Contribution du partenaire externe :

Nom du partenaire :

JDRF (Markham, Ontario)

Montant :

$ 1 750 000$

Équipement :

$ 0$

Partenaire du candidat à l'externe :

Nom du partenaire :

S/O

Montant :

S/O

Équipement :

S/O

Partenaire externe (en nature) :

Nom du partenaire :

S/O

Montant :

S/O

Équipement :

S/O

Mots clés :

Digital Health; Pediatrics; Personalized Care; Precision Medicine; Type 1 Diabetes

Résumé :

Diabetes is one of the most common life-long diseases affecting children. Many children living with diabetes use glucose sensors that measure sugar levels every 1-5 minutes and insulin pumps that deliver insulin via a small catheter under the skin. Information coming from these technologies help kids and families and their healthcare providers treat their diabetes but, this information is usually located in different online places. The lack of 'one trusted place' to see all this important information prevents patients/parents from using data to manage their diabetes and makes it harder for healthcare providers to provide the right care to the right patient at the right time, especially as kids' bodies and minds change as they grow and mature. TrustSphere is a new digital tool that will solve the problem of health information and data in different places, letting us use data to deliver better diabetes care. Patients and families, and their healthcare providers can see important diabetes information, like blood sugars and insulin doses streaming from glucose sensors and insulin pumps, or recommendations from the diabetes team, in one place. TrustSphere's first version has been developed and will be tested with 50 children at the BC Children's Hospital (BCCH) Diabetes Clinic. In this proposal, we will expand TrustSphere's capability by collecting more data from patients such as their healthy living behaviours, diabetes self-management behaviours, quality of life and mental health, and combine these data with glucose sensor and pump data to better understand differences between groups of patients. With patients and families we will co-create personalized and tailored care experiences and use advanced methods to analyze data like machine learning to navigate patients and families to the care they need, when they need it. Our goal is to create a collaborative care experience, improve diabetes self-management, and ultimately improve patient experience and outcomes.

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Version :

20250311.1