Information détaillée

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Titre du projet :

Promoting Healthy Sleep for Children with Neurodevelopmental Disabilities and Parents in Hospital and at Home

Chercheur principal :

Raja, Momina

Co-chercheurs :

S/O

Directeur(s) de recherche :

Thomas, Megan R

Établisssement payé :

Dalhousie University (Nova Scotia)

Établissement de recherche :

IWK Health Centre (Halifax)

Département :

S/O

Programme :

Bourses de voyage - Appui communautaire des Instituts

Concours (année/mois) :

202310

CEP désigné :

Bourses de voyage - Appui communautaire des instituts

Institut principal :

Développement et santé des enfants et des adolescents

Thème principal :

Recherche clinique

Durée (année/mois) :

1 an 0 mois

Contribution des IRSC :

Donateurs :

IDSEA

Montant :

1 500$

Équipement :

0$

Contribution du partenaire externe :

Nom du partenaire :

S/O

Montant :

S/O

Équipement :

S/O

Partenaire du candidat à l'externe :

Nom du partenaire :

S/O

Montant :

S/O

Équipement :

S/O

Partenaire externe (en nature) :

Nom du partenaire :

S/O

Montant :

S/O

Équipement :

S/O

Mots clés :

Healthcare Providers; In-Patient Settings; Neurodevelopment Disorders; Optimizing Health And Well-Being; Parents/Caregivers; Pediatric Sleep

Résumé :

Healthy sleep is needed for our brain and body to function properly. Children who have neurodevelopmental disabilities (NDDs) and their parents have more sleep challenges compared to children who do not. The NDDs are a large group of conditions that occur as a result of differences in the child's brain growth and development early in life. One of the most common NDDs is autism spectrum disorder. All children with NDDs have their own strengths and challenges, and the reasons for their sleep difficulties also vary. Children with NDDs may have sleep difficulties because of challenges adjusting to their environment. Health concerns such as low iron levels, breathing difficulties at night and pain also occur more commonly. Children with NDDs are more likely to be on medications, often long-term, many of which can disrupt sleep. This project builds on the findings of our previous exploratory study of parents' and children's sleep within an inpatient setting. Information on sleep, mood, activities, possible sleep disrupters and light and sound recordings were collected. Five parents (2 fathers, 3 mothers) completed semi-structured interviews. An anonymous online survey captured healthcare providers knowledge and insights of their own and their patients' sleep, including co-resident parents. This project will work in tandem with the funded sleep for health in hospital and at home project but with a specific focus on children with NDDs (aged 2 to 14 years). The aim of my project is to use hospitalization as an opportunity to look for and address sleep disorders, to understand how to improve sleep in the hospital, and to reduce the disruption hospitalization has on sleep when children go home. Importantly, this project meets Priority 4 set out by the Paediatric Inpatient Research Network (PIRN) and has the potential to positively impact sleep health.

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Version :

20250311.1